Recovery: Day 8

Well, here we are one week + one day post-op, and our Myla June continues to amaze us with her spirit and speedy recovery. Today, we had our follow up appointment with Dr. Khan, Myla's cardiologist. She got to the new and improved Myla. This new and improved Myla may have come down with small case of post-traumatic stress disorder. She once loved doctors' offices, nurses, waiting rooms, etc. This is no longer the case. From the minute we sat down in the waiting room at Dr. Khan's office, Myla showed off her new and improved lungs by screaming. This continued into the room where blood pressure was taken and an EKG was attempted. At CHOP, the nurse that did the EKG took about 2 minutes. We think Dr. Khan should hire that nurse. Dr. Khan's assistant attempted multiple times but could not master the art, especially with a screaming baby. We were able to console Myla before she went in for her echocardiogram. Results of the echo showed a fully functioning heart, with no murmur, no fluid around heart or lungs, and closed ASD and VSD. Dr. Khan also removed the stitches which was not fun to watch. I don't think Myla enjoyed it either.

Myla is still in some pain here and there is much more easily agitated. We aren't sure if its due to the pain or just escalated levels of anxiety. She is sleeping well; only awakening agitated a couple of times a night. She is still getting the majority of her formula from her feeding tube. Once she is completely recovered, we are going to dive in head first to getting her off of her tube. Yesterday and today, she did pretty well with the baby food that we gave her. She is swallowing a lot more and its taking her a lot longer to get upset.

The meals from our mealtrain have begun. They are delicious and filling. By not having to worry about dinners for a while, Lindsey and I can fully devote our time to our baby, which is great. Thanks again to the Strouds for organizing this and to all those who have signed up to for a meal. It means a lot. Lindsey and I are doing well. I get the sense that Lindsey is starting to want me to go back to work. She has taken to this house mommy thing pretty well and has her full line up of "programs." Though I can appreciate an episode of "The Feud" here and there..it probably isn't on my list of shows that I will watch twice a day. Love you Linds.