Tuesday, December 6, 2011

Most Surreal Countdown Ever.

Not much emotional gobblygook this evening; just some details. This Thursday we head to CHOP with our Bean for our consultation with Dr. Spray, the pediatric cardiothoracic surgeon that will be performing Myla's surgery. Following the consultation, Myla will have her pre-admission testing. This will be comprised of a chest X-ray, echocardiogram, and blood work. This is all old news for Myla as she has had multiple X-rays, echocardiograms, and a large quantity of blood taken. Two weeks from Thursday (Thursday December 22) Myla will have her surgery. We wanted to try to avoid being in the hospital for the holidays, but that is now unavoidable. Myla needs the surgery and this was the first date they had. I assume that a Children's hospital will have some festivities for the holidays, but this is in no way how planned on celebrating our daughter's first holiday season. We aren't really sure of any more details at this point. We have questions for the surgeon about the surgery, the recovery, how long we need to quarantine Myla before and after the surgery, and probably a hundred more questions will come up on our drive home from the consultation.

So today we are 16 days away and counting....16 days to love our little lady up, roll around on the ground with her, spin her in circles, and respect that fine line between squeezing her so hard because we love her so much and squeezing so hard doing further damage. We love you Myla June, you amazingly strong girl.

3 comments:

  1. As a very dear friend told me today in an email -
    Look at it as your holiday gift. You have the surgeon of choice, you will not have to wait too long and Myla is strong and in good health. God's Blessings are hidden but they are there!!!
    MomMom and Pop love you so much MJ. You are a gift to us every day.

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  2. Scott...i have been following your sweet myla's journey through your blog and my mom's occasional updates. I hardly know what to say. I wish the three of you much love and strength for her surgery and her recovery. You are a great dad and miss myla is super lucky! I really admire your writing and your honesty...it is rare to hear the emotional side from a man. give her a little kiss from our family. Pennie (schwartz)

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  3. We are all right there with you guys. Sending love and squeezes and so many kisses her cheeks will be raw! Love you guys!

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