Sunday, March 4, 2012

Myla Learns to Eat: Weaning Day 4

Difficult. Stressful. Impatient. I guess these words partially capture our day today. Myla recieved her 300 mLs overnight which ends at 3am. She did not get anything in her tube again until 1pm. That was 10 hours or so without a substantial feeding. She was a little fussy but not as bad as yesterday; however. her eating only mildly improved if improved at all. We had a Skype session this morning with Dr. Marcus Wilken, who is a world renowned expert in this field. He has been nice enough to do skype consultations with us free of charge as needed. He is from Germany but doing a tube weaning in Washington, DC, this week. He suggested that after tomorrow, we pull Myla's completely. This will let her feel hunger without the discomfort of having the NG tube in. This suggestion really made us nervous (even though we could re drop the tube at any time).

Lindsey and I are holding up okay. There are moments of great stress. Today was the first day that tears made their appearance. Myla is very interested in food but isn't doing much swallowing. She had a play picnic with mom mom and pop today, which they loved. She also got a lot of loving from the same. We started to get a bit concerned about dehydration today; however, MJ came through at the end of the day with 4 piddle diapers (probably more, but with the overnight diaper its is really hard to tell) and 1 nasty.

Luckily the night end on somewhat of a positive night with Myla taking a good amount of water from her cup and really enjoying it. We are beginning to think that she just hates the taste of her formula (I don't blame her). We hope to get some results from her allergy testing tomorrow so we could see if we could start using a milk based formula rather than the hypoallergenic grossness that she gets now. I would say she probably took about 3 ounces of water by mouth today and 1 ounce of formula and a minimal amount of purees. She ate some puffs, some fruit loops, some vegetable puffs and some bits of mom moms apple. I guess we need to measure success in bites.

Lindsey and I killed about bottle of wine. My guess is that there is an inverse relationship between the amount Myla eats and the amount her mommy and daddy drink.

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