"I love my cereal"

I put that in quotes because it is an original lyric to a Sharon Roth classic song entitled "I love my cereal." The song was initially written for Myla's amazing cousin, Sydney (aka Syd Vicious aka Hurricane Sydney). My mom would sing it as she fed Sydney her cereal. My mother, not known for her tonality, actually concocted a very catchy little tune.

"I love my cereal..It is so good for me...I love my cereal...It tastes so heavenly."

This tune has been reprised recently as we have begun the process of introducing purees and cereal to Myla. We are not expecting miracles; however, Myla has been doing pretty well with it. We are going very slowly and following Myla's cues as to not have her develop another aversion. Tonight was amazing. Lindsey, Gram (Lindsey mommy), and I were singing and dancing all over the place, and the little Bean was loving it. She was smiling and singing and actually swallowing a lot (dare I say the majority of the food?) We are not close to being able to take out the feeding tube yet, but we are seeing some signs that we have possibly turned a corner.

Feeding Myla through her tube, on the other hand, is quite onerous. We have slowly gone up from 2.5 ounces every 3 hours during the day (4 times per day) to 4.5 ounces every 3 hours (6 times per day). The actual feeding takes about 1 hour to complete. Then, we must keep her upright for 3o minutes following, for a total of 90 minutes. This is part of our new gastroenterologist's plan to get Myla to feel hunger again. The goal is to totally get her off the overnight feed. Tonight, she will finish her last feed around 11:30pm and not eat again until around 7am.. Let's see how she does.

Myla had her follow up with Dr. Piccione, the CHOP pulmonologist. We like him. She weighed in at 12 lbs 10 ounces there (14th percentile), which must have been cool for Lindsey to see after not such a good weight gain the previous week. My hero wife has been carrying the load so to speak when it comes to the doctor's appointments. I barely have time to breath at work these days so getting out for an hour or two is becoming more and more difficult; however, there are certain appointments that I will never miss. That's it for now. Roth out.