A Brief Update

Just a quick update for our 8 followers on the blog and the rest our pals on facebook. We have a busy week this week. Tomorrow is the big cardiology case presentation at CHOP in which Myla's potential for surgery will be discussed. With all of the reading and research that I have done, I feel like I could put on some scrubs and participate in tomorrow's case presentation and hold my own. Unfortunately, we as parents do not seem to have a voice in this process. Even if we did, our voice might be a confusing one. I go back and forth in my head about the surgery. No parent wants to see their baby being carried away into an operating room for open heart surgery. At the same time, we see how happy and resilient our Bean is now without a fully functional heart. We could only imagine how vibrant and amazing she will be with a fully repaired heart. I am realistic in my belief that a repaired heart will not be the end of Myla's difficulties; however, I am hopeful that a heart functioning at an optimal level will relieve some stress on other parts of Myla's body and allow the healing process to begin.

This week's medical events for Myla include tomorrow's cardiology case presentation, an initial appointment with the feeding therapist at Children's Specialized Hospital (she will be going weekly), and a second opinion gastroenterology appointment at Robert Wood Johnson in New Brunswick. If the weather holds out, and we have time, we may also introduce Myla to Rutgers University.